Collaborative Partners and Resources We Support
(Check back soon! We’ll be adding more!)
Aging With Dignity
We provide you with the practical information, advice and legal tools you need to ensure your wishes and those of your loved ones will be respected. By helping you improve your own quality of care, we can bring about dramatic change, one person at a time. The Five Wishes document helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It is unique among all other living will and health agent forms because it looks to all of a person’s needs: medical, personal, emotional and spiritual. Five Wishes also encourages discussing your wishes with your family and physician.
For more information visit www.agingwithdignity.org.
American Academy of Hospice and Palliative Medicine
For more than 25 years, the Academy has dedicated itself to expanding access of patients and families to high quality palliative care, and advancing the discipline of Hospice and Palliative Medicine, through professional education and training, development of a specialist workforce, support for clinical practice standards, research and public policy. Membership is available to physicians specializing in hospice and palliative medicine, nurses and other health care providers who are committed to improving the quality of life of patients and families facing serious illness.
For more information visit www.aahpm.org.
Association for Death Education and Counseling
The Association for Death Education and Counseling®. The Thanatology Association® is one of the oldest interdisciplinary organizations in the field of dying, death and bereavement. Its nearly 2,000 members include a wide array of mental and medical health personnel, educators, clergy, funeral directors and volunteers. ADEC offers numerous educational opportunities through its annual conference, courses and workshops, its certification program, and resources.
For more information visit www.adec.org.
Center To Advance Palliative Care
The Center to Advance Palliative Care (CAPC) is a resource to hospitals and other healthcare settings interested in developing palliative care programs. CAPC is a national initiative supported by The Robert Wood Johnson Foundation with direction and technical assistance provided by Mount Sinai School of Medicine. For more information visit www.capc.org.
A free public service that connects older people and their families to valuable information on services and resources for senior citizens anywhere in the nation. The Eldercare Locator is a public service of the U.S. Administration on Aging administered by the National Association of Area Agencies on Aging. For more information visit www.eldercare.gov .
The Grief Dialogues
The Grief Dialogues is a non-profit artistic movement started to create a new conversation about dying, death, and grief. Our mission is to erase the stigma surrounding death, dying and grief. Our goal is to publish an anthology of plays, monologues, essays, poems and to produce a live theatre production that includes these submissions as well as music and film while offering support to those who are suffering through grief. The Grief Dialogues is also part of the Positive Death Activist Movement5 created by Megan Rosenbloom and Caitlin Doughty of Death Salon. This project was began by Elizabeth Coplan.
To create universal awareness and understanding of grief and provide a virtual community, without geographical boundaries, where individuals can connect, heal and memorialize their loved ones.
Their vision is to create an environment where individuals can affirm that the emotions associated with grief are normal, and where they can feel safe to express their grief. To offer our users access to information about local community support services that can help them through bereavement and healing.
For more information visit www.healgrief.org.
Hospice and Palliative Nurses Association
The purpose of the HNPA is to exchange information, experiences, and ideas; to promote understanding of the specialties of hospice and palliative nursing; and to study and promote hospice and palliative nursing research.
For more information visit www.hpna.org
International Children’s Palliative Care Network
Children and young people with life-limiting or life-threatening conditions have very specific and unique palliative care needs, often different to those of adults. The International Children’s Palliative Care Network (ICPCN) shares a vision that these total needs should be met to encompass physical, emotional, spiritual and developmental aspects of care.
The ICPCN is the only international network of organizations and individuals working within all children’s palliative care services across the world. We believe that every life-limited child deserves a high standard of total care, wherever they live in the world.
For more information visit www.icpcn.org.uk.
The MISS Foundation is an international 501c3, volunteer based organization providing C.A.R.E. [counseling, advocacy, research, and education] services to families experiencing the death of a child.
For more information visit www.missfoundation.org
National Hospice and Palliative Care Organization
The National Hospice and Palliative Care Organization (NHPCO) was founded in 1978 as a charitable organization advocating for the needs of people facing life-limiting illness. Today, NHPCO is the world’s largest and most innovative national membership organization devoted exclusively to promoting access to hospice and palliative care and to maintaining quality care for persons facing the end of life and their families.
For more information visit www.nhpco.org.
Open To Hope Foundation
Provides an online forum to support people who have experienced loss, helping them to cope with their pain, heal their grief, and invest in their future.
For more information visit www.opentohope.com.
A registered charitable trust formed to fulfill the need for a stable organization working at the national level to fight for needs of the suffering millions in India who are in need of pain relief and palliative care. Most of the trustees are people who have done pioneering work in the field of palliative care in the country. Their vision is that every person suffering from life-limiting or incurable disease in India have access to effective pain relief and quality palliative care by catalyzing the development of effective pain relief and quality palliative care services across India through the delivery of services, education, research, advocacy and information. Every person suffering from life-limiting or incurable disease in India has access to effective pain relief and quality palliative care.
For more information visit www.palliumindia.org.
The Bereaved Parents
To offer support, understanding, encouragement and hope to other bereaved parents, siblings and grandparents after the death of their children, brother, sister or grandchildren.
For more information visit www.bereavedparentsusa.org.
The Compassionate Friends
The mission of The Compassionate Friends: When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family.
For more information visit www.compassionatefriends.org.
The Dougy Center
The mission of The Dougy Center is to provide to families in Portland, Oregon and the surrounding region loving support in a safe place where children, teens, and their families who are grieving a death can share their experience as they move through their healing process. Through our National Center for Grieving Children and Families, we also provide support and training locally, nationally and internationally to individuals and organizations seeking to assist children and teens in grief.
For more information visit www.dougy.org.
The Grief Toolbox
Having been down this road, we want to give back. We want to reach out to those who are earlier on this road and help you to find the tools that you need to work through your grief journey.
For more information visit www.thegrieftoolbox.com.
Tragedy Assistance Program For Survivors
Caring for families of our fallen heroes.
For more information visit www.taps.org.
The VA Nationwide Palliative Care Network
The VA Palliative Care Network (PCN): Our primary mission is to create and foster a communication network for VA providers involved in hospice and palliative care. This VA Palliative Care Network consists of two major parts, a palliative care portal and an electronic bimonthly newsletter which in turn is linked to this palliative care portal. The Palliative Care Network (PCN) is supported by the Offices of Geriatrics and Extended Care (GEC) and Academic Affiliations (OAA).
For more information visit www.va.gov.
World Health Organization Pain and Palliative Care Communications Program
Cancer Pain Release is the publication of the World Health Organization global communications program to improve cancer and HIV pain control and palliative care. Cancer Pain Release is dedicated to keeping a worldwide and multi-disciplinary audience in the health professions and government abreast of relevant information and developments in clinical medicine, education and policy.
For more information visit www.who.int/cancer/palliative/en/.
Worldwide Palliative Care Alliance
The Worldwide Palliative Care Alliance promotes universal access to affordable quality palliative care through the support of regional and national hospice and palliative care organizations.
For more information visit www.thewpca.org.