Board of Directors

Board of Directors

Ken Ross – Founder and President

EKR President, Ken Ross

Ken Ross is the founder and President of the Elisabeth Kübler-Ross Foundation, established in 2006 to preserve, protect, and extend the work of his mother, Dr. Elisabeth Kübler-Ross, whose contributions fundamentally shaped modern understanding of death, dying, and the human experience. He served as President from 2006–2013 and again from 2018 to the present, and previously served on the Board of the Elisabeth Kübler-Ross Center from 1989–2005.

From childhood through adulthood, Ken accompanied his mother on extensive international travel, observing her lectures, workshops, and interactions with patients, families, clinicians, and educators around the world. These early experiences fostered a deep appreciation for cultural perspectives on illness, loss, and healing. Over the course of his life, Ken has traveled to more than 112 countries, an experience that continues to inform his global outlook and his commitment to culturally responsive, internationally grounded end-of-life education. In the final nine years of Dr. Kübler-Ross’s life, he served as her primary caregiver until her death in 2004. These formative years established a lifelong dedication to ensuring that her work is carried forward with integrity, relevance, and care.

For nearly four decades, Ken has overseen Dr. Kübler-Ross’s legal, copyright, and intellectual property affairs, providing long-term continuity and ethical stewardship of her writings and teachings. As President of the Elisabeth Kübler-Ross Foundation, he leads global public relations and strategic partnerships; maintains relationships with more than 80 international publishing partners across 44 languages; supports 12 international Foundation chapters; and curates Dr. Kübler-Ross’s personal and professional archives. Under his leadership, the Foundation has delivered live, in-person educational programming in more than 20 countries over the past five years.

In 2019, marking the 50th anniversary of On Death and Dying, Ken and his family curated and donated a significant collection of Dr. Kübler-Ross’s personal and professional archives to Stanford University, ensuring long-term scholarly access while preserving the historical and human context of her work. During this milestone year, he also appeared in major international media outlets—including Radiolab, BBC Witness History, Irish National Radio, and ABC Australia—reflecting on the continued relevance of Dr. Kübler-Ross’s work in contemporary end-of-life care.

Extending the Foundation’s international mission, the Elisabeth Kübler-Ross Foundation entered into a partnership with St. Luke’s Hospital to launch a Compassionate Community Program in Singapore in 2026, in collaboration with government partners. The program is designed to address the needs of Singapore’s aging population through community-based education, engagement, and end-of-life care initiatives.

Ken was named an Honorary Faculty Member at the University of Indonesia’s School of Economics in Jakarta in 2023. In recognition of his international contributions to grief education, compassionate care, and thanatology, he received the Medal of Thanatology Merit from the Association of Mexican Physiotherapy & Thanatology in 2025. He has also been awarded a Certificate of Commendation from United States Senator Harry Reid (Nevada) for his leadership and public service in advancing end-of-life awareness and education.

Ken also serves as Vice President of Open to Hope and is a member of the Advisory Council of the Humane Prison Hospice Project, supporting compassionate care, grief education, and dignity at the end of life.

Joan Marston – Board Member/Vice President

Joan Marston is based in South Africa and is presently an International Children’s Palliative Care Consultant with PaCCHI – Palliative Care for Children a Humanitarian Imperative; also ICPCN Global Ambassador for Children’s Palliative Care and Director of Education and Development for Sunflower Children’s Hospice in South Africa.

Joan’s background is in Nursing and Social Science and she has 22 years experience in palliative care for children – caring for children when the Executive Director of Bloemfontein Hospice and then founding the Sunflower Children’s Hospice in 1998 in Bloemfontein, South Africa, as well a regional network for life-limited children, the St. Nicholas Bana Pele Network, in 2009. As the national pediatric development manager for the Hospice Palliative Care Association of South Africa, from 2007 – 2010, Joan and her team developed a strategy for a national network of services, promoting the considerable growth of the number of children’s palliative care services for children in South Africa. During that time she was the Project Manager for a program to develop children’s palliative care Beacon centers in Tanzania, Uganda and South Africa.

In 2005 colleagues from 15 countries established the International Children’s Palliative Care Network, with Joan as the first Chairperson from 2005 – 2010, then become the first CEO from 2010- October 2016. The ICPCN now has membership in over 100 countries.

Joan was part of the group that developed the new Guidelines for Persisting Pain in Children, as well as Guidelines for Disclosure in Children, for WHO.

Married to Richard with two adult children living in the UK, and an active member of the Anglican Church, Joan is a Lay Minister in the Cathedral in Bloemfontein; and an Honorary Lay Canon of Blackburn Cathedral in Lancashire, England.

A committed advocate for children’s right to palliative care and pain relief, Joan believes that this can be achieved worldwide when people share knowledge and resources, and work together to expand access to palliative care for all children.

Barbara Rothweiler, Ph.D, ABPP – Board Member/Board Secretary

Dr. Rothweiler, daughter of Elisabeth Kübler-Ross MD, is a licensed psychologist, with board certification in neuropsychology and rehabilitation psychology. In addition to conducting neuropsychological evaluations, she provides consultation liaison services, specializing in medical rehabilitation, but also hospital wide, including palliative care and hospice. She serves on the Aspirus Wausau Hospital Bioethics Committee and the Medical Staff Support Committee. She is a member of the American Academy of Clinical Neuropsychology, International Neuropsychological Society, National Academy of Neuropsychology, American Psychological Association, and the Wisconsin Psychological Association. She also serves as board member of Mount Sinai Congregation.

Andrew MacPherson – Board Member

Andrew-MacPherson-headshotAndrew is a recognized expert and has a special emphasis on a number of transformational person-centered health care issues, including the public health challenges of social isolation and loneliness, value-based payment strategies, and value-based insurance design (V-BID), and improving advanced illness and end-of-life care delivery in the U.S. He is also deeply engaged in crafting innovative policy solutions for public sector health plans. A sought-after speaker on national health policy and political issues, Andrew regularly presents at a range of national healthcare conferences, and his insights have been featured in leading media outlets such as CBS Evening News, The Washington Post, Health Affairs, NPR, InsideHealthPolicy, and more.

Andrew MacPherson is Founding Principal and Managing Partner at Healthsperien and brings over 20 years of expertise in federal and state health care policy and politics to his leadership role there. Andrew co-leads a team of over 50 experts focused on strategic policy development and advocacy efforts for a diverse array of clients, including Fortune 100 companies, national health plans, professional associations, issue-based coalitions, healthcare innovators and start-ups, and national not-for-profit organizations.

Before co-founding Healthsperien in 2013, Andrew served as Director of Government Affairs at Jennings Policy Strategies, Inc., a nationally-recognized health policy and government affairs consulting firm founded and led by Chris Jennings, Former Deputy Assistant for Health to President Clinton and later President Obama. At JPS, Inc., Andrew focused on high-profile health care policy initiatives, including the Obama and Clinton presidential campaigns, the Bipartisan Policy Center’s health reform efforts with former Majority Leaders Baker, Daschle, Dole, and Mitchell, and the Clinton Global Initiative. Andrew also advised a wide range of clients on federal policy, political, and communications strategies during the development, passage, and implementation of the Affordable Care Act.

Earlier in his career, Andrew held advisory positions with the American Psychiatric Association, Senators Carl Levin (D-MI) and Patrick Leahy (D-VT), and the Democratic Governors’ Association. Originally from Vermont, Andrew earned a B.A. in Political Science and Philosophy from The George Washington University in 2005.

Stephen Connor, PhD – Board Member/Treasurer

Stephen R. Connor, Ph.D., is the Executive Director of the London, UK-based charity, the Worldwide Hospice Palliative Care Alliance (WHPCA), an alliance of over 400 national and regional hospice and palliative care organizations in over 100 countries worldwide. Dr. Connor has worked continuously in the hospice/palliative care movement since 1975 and has been the CEO of four US hospice programs. After serving for 11 years as vice president of the National Hospice and Palliative Care Organization (US), he is now focused on palliative care development internationally with the WHPCA and has worked on palliative care globally in over 27 countries including as an international palliative care consultant for the Open Society Foundations. He serves on several technical working groups of the World Health Organization (WHO) in Geneva.
EKR-and-Stephen-ConnorIn addition to being a hospice and association executive, he is a researcher, educator, advocate, and psychotherapist, licensed as a clinical psychologist in California. Dr. Connor’s areas of research interest in palliative care include bereavement, denial, outcome measurement, and evidence-based care for the dying. He has chaired the board of the International Work Group on Death, Dying, & Bereavement, is on the Scientific Advisory Board for the National Palliative Care Research Center and is a member of the board of the Elisabeth Kübler-Ross Foundation and the International Children’s Palliative Care Network (ICPCN). Dr. Connor is on the editorial board of the Journal of Pain & Symptom Management and has published over 175 peer-reviewed journal articles, reviews, and book chapters on issues related to palliative care for patients and their families. He is the author of Hospice: Practice, Pitfalls, and Promise (1998), Hospice and Palliative Care: The Essential Guide (2009 & 2018), and editor of Building Integrated Palliative Care Programs and Services (2017) and the Global Atlas of Palliative Care (2014 & 2020), a WHPCA publication in partnership with the WHO.
Twitter: @thewhpca
Mary Spada – Board Member

Mary-Spada-EKR-Foundation-headshotMs. Spada brings over two decades of knowledge, thought leadership, and experience to address corporate challenges with collegial creativity, exceptional insight, and razor-sharp intellect. Ms. Spada is a highly valued catalyst for change that visionary leadership relies upon again and again for out-of-the-box thinking to benefit future planning, complex project management, transaction structuring, and business transformation.

Recent engagements include:

  • business planning and entity formation for novel tech/transportation start-up
  • public/private partnership opportunity assessment and evaluation
  • planning, financing, design and construction of HPC facilities
  • assessment of digital economy entry strategy
  • planning and facilitation of leadership summits to stimulate innovation and align objectives

Ms. Spada manages and directs all functions of the consulting firm she founded in 2001, digitale inc. Under her direction, the firm provides strategic planning and management services to support “high-performance” initiatives and investments for its diverse and dynamic client base. Ms. Spada has an established track record of creating success for tech entrepreneurs, corporate visionaries, scientific research leadership, and private investors, many of whom have been long-standing clients and colleagues.

Ms. Spada has been recognized by the White House and the European Commission for her contributions to supporting science and technology policy and achievement. She has appeared on the cover of the USA Today Money section focused on the future of technology and contributes to many digital economy events and initiatives. She is dedicated to supporting the evolution of our communities and society with transformative thought leadership and the beneficial use of disruptive technology.

Ms. Spada currently resides in the northeastern region of the United States with her husband, two children, and two energetic Portuguese Water Dogs.